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Liz calls for action on treatment for Cystic Fibrosis


I was delighted to speak in the debate on a public petition calling for the drug Orkambi to be made available on the NHS for people with Cystic Fibrosis. You can watch ITV Central’s coverage of my comments here.

Orkambi is a life-changing drug that tackles the root causes of Cystic Fibrosis and is available across Europe. However, it has not been made available on the NHS in England due to its cost. 118 of my constituents signed a petition that called for a debate on why it is not available on the NHS, and I was proud to represent them in Parliament

I believe the NHS and the drug company behind Orkambi must get together to resolve this issue as quickly as possible. We must also make sure there are proper processes in place so that new drugs are agreed for use by the NHS as quickly as possible.

You can read the full debate here, read the petition here, and read information from the Cystic Fibrosis Trust on Orkambi here.